Oldham couple share early onset dementia diagnosis to encourage others to seek help

Andy Cragg, 64, received his diagnosis in 2024 after symptoms first noticed by his wife Saki several years earlier.

Saki said she first became concerned in 2015 after noticing changes in Andy following an injury and difficulties at work.

"At home, I started to notice Andy asking the same questions repeatedly," she said.

"He’d ask our children how their day had been several times during tea. Even they noticed. They were only 10 and 12."

She said Andy also started misplacing belongings and forgetting things including his wallet and PIN number.

"He just seemed quieter, not himself. He was more anxious, low in mood, and finding it hard to concentrate."

After visiting their GP in 2020, Andy was initially treated for anxiety and depression because dementia was not suspected at his age. Further assessments in 2023 led to a diagnosis of early onset Alzheimer’s the following year.

Following an assessment through the Oldham memory assessment service run by Pennine Care NHS Foundation Trust, Andy was able to access support from Dr Kershaw's Hospice and Age UK Oldham.

Saki said receiving the diagnosis felt overwhelming at first.

"I felt so alone, like my life had ended. Our mortgage was due to end, and we had been planning holidays, it felt like it was all gone."

She said support from an admiral nurse helped with financial guidance, medication advice and understanding what support was available.

"In the beginning I didn’t know where to go for help. I met the admiral nurse who helped lots, with advice on where to go for financial support, advice about my worries or about medication."

She also described the support she receives through the dementia hub at Dr Kershaw’s Hospice.

"The dementia hub at Dr Kershaw’s has been brilliant. It’s a place where you feel you belong, a place where people help. When I get to the gates, I feel happiness. It’s a safe, happy place."

Andy said his family has been central to helping him cope with daily life.

"My wife Saki and my two sons have helped me so much every day."

Their sons, now aged 16 and 18, help with everyday tasks, while Andy also enjoys regular walks with his dog Milo and support from a personal assistant through Oldham Council.

He said the dementia hub has also become an important part of his routine.

"It’s brilliant, especially chatting with a volunteer who shares my passion for motorbikes."

Saki is encouraging anyone worried about changes in memory, concentration, mood or behaviour not to ignore concerns.

"Seek help. You’re not alone. Go to your GP. The person affected might not recognise the problem, so loved ones need to speak up."

Claire Evans, Oldham memory assessment service manager, said, "Getting help early can make a real difference. There’s a range of practical support and advice available to help you live well with dementia."

More information about Oldham memory assessment services is available through Pennine Care's Oldham memory assessment service.